![]() ![]() So, we’ve brought together a list of organisations that act as the gatekeepers and champions of your data, along with details of where people can go for guidance and where data is held. Today NHSX launches its new draft strategy to build understanding on how data is used, the potential for data-driven innovation and improving transparency so the public knows how their data is used. NHS Digital has announced a delay in implementing GPDPR to help people better understand why sharing health data is important and how it will be kept safe. ![]() Tracking disease through the whole community gives invaluable information for everyone’s benefit.Īnd we know that trust is the cornerstone of confidence not to opt out. By reviewing GP records of vaccinated children and following those children’s progress, researchers were able to disprove any link and rebuild confidence in lifesaving jabs.īut this type of research can only work if most people are included. In the 1990s a suggested link between the MMR vaccine and autism led to a mass boycott of childhood vaccines. While the response to the pandemic has made it more apparent how sharing data for research and healthcare planning can save lives, it is nothing new. The NHS holds and uses a wide range of patient data, and carefully controlled access to this information during the pandemic enabled researchers to quickly develop treatments and vaccines, and allowed primary healthcare to protect and support the most vulnerable. We review every request for use of identifiable patient data without consent for research purposes. One of those is the Health Research Authority. There are many organisations, ‘data guardians’ that protect end to end use of the data. The General Practice Data for Planning and Research (GPDPR) data collection would allow NHS Digital to gather patient data, but use of this is tightly regulated. ![]()
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